Getting Diagnosed....My Tips

As some of you know getting Diagnosed with Cushing's isn't always the easiest thing. A lot of people struggle with that because Doctors dismiss the symptoms of try and treat them individually. I went to numerous Doctors for years thinking I had hormone problems from my hysterectomy  at a young age of 34. I was treated for weight, treated for anxiety, treated for high blood pressure, treated for hot flashed, treated for bruising etc etc etc. It wasn't until I found a Doctor that told me I think you have Cushing's that I started the road to get treated for them all and not individually. These are my personal tips. I am not a Doctor but this is what I have learned a long the way. If you are reading this you already know or think you have Cushing's so I hope this helps you.

Tips:

• Doctors listen to the first few symptoms first. I personally tell people to start out with the Cushing's Symptoms that you have that are more Cushingoid. For instance if you have weight gain, buffalo hump, moon face, straie, bruising, depressed, and anxiety. You should tell the Doctor first about your buffalo hump, moon face, straie, bruising and leave weight gain and depression to the end. I know most of us say weight gain first or depression but those really should be at the end so the Doctors don't try and treat you for that and don't listen to the rest.
• Bring Before and After pictures to your doctor. Also a food log so you don't get the well you must be eating too much bit. Its helpful for others to see the difference. They don't know what you looked like before. You don't have to be big to have Cushing's either. My good friend Van who has a blog at www.onedelicateheart.blogspot.com isn't a big person at all. She is one of the founders of this blog also. Van is in remission from Cushing's. You can have different symptoms.
• You don't have to have all the symptoms to have Cushing's. I would doubt myself a lot actually because it seemed weird that I would have this disease. One thing my husband said to me was "Name something else that would have all these symptoms and come back to me". I couldn't. Maybe its a good thing to ask your doctor too. Mind you I am in remission now and had two tumors removed. I went through my doubts too though.
• Join groups like Cushings!! on Facebook or search out blogs or sites of others who have experienced this. Learn from them and others. Get the support you need because it is out there.
• If you are struggling with money for medical bills or going to the right doctor contact NORD. National Organization of Rare Diseases. They are an amazing organization who helps so many. They will help pay for your doctor bills, your hotel or flights, MRI etc. until you get Diagnosed. www.http://rarediseases.org/
• There are a lot of websites out there. One of my favorites is www.cushings-help.org which has been around for almost 14 years. It has so much knowledge. My other favorite site is www.cushingstories.com because it has personal stories of those with Cushing's at all different stages. They also have blogs to follow and Videos of Cushies. If you look at some of the stories at the end of that page is also more Videos of that particular person.
• Test....Test....Test.... keep testing. One or two tests that are normal doesn't mean you don't have Cushing's. Have your doctor give you 24 hour urine tests, Saliva's, Midnight Serums of Cortisol, Dex test, Atch tests. Remember most Cushing's patients are up at night and tired in the morning. Our Cortisol is higher at night than a normal person and can be low in the morning hence the Midnight Serums. Test, Test, Test. Don't give up! I had over half normal and half highs because I was cyclical. Check out www.cushingstories.com Facts section on when to test. It could make all the difference.
• A lot of Doctors hear that they will never meet someone who has Cushings that it is too Rare. If you feel you have it please keep seeing Doctors until they test you and do MRI or Scans. Cushing's only gets worse with time. Be your own advocate. There ARE Cushing Specialist Doctors out there. Who will listen to you. If you think you cant afford to go there (NORD can help) just remember that it is worth it to getting to the other side of this. Personally I had to say to myself its worth it to go to a specialist than waste my time and energy and money on endo after endo. Two endos wouldn't even see me because I had a normal test. I went to a Cushing specialist and found my tumor, got diagnosed, had surgery and now am in remission getting better by the day. That was worth it to me!

These are just a few tips from me. There are many more out there but these ones are the ones that were important to me. I hope that it helps. If you ever want to talk to me please feel free to comment or write me personally at Cushingscountrygirl@gmail.com

Cushing's Exposing Myself in Pics

Cushings.....the ugly disease:( Okay first off I would like to say I have heard this so many times and I have to disagree! This is not the ugly disease. Actually would make me mad or sad when I heard this. This is a hard enough disease of which so many ppl have a hard time getting diagnosed. I am going to really expose myself in this blog with pictures that I am not proud of and never thought I would put out there for anyone or everyone to see. BUT I am going to because I want to show some of the signs and symptoms of what could happen and what did happen to me. First off I would like to say "I AM NOT UGLY....and none of what is happening to me or has happened to my body is because I wanted it."

hot spots that just appeared

My buffalo hump that grew

round moon face

bad stretch marks just appeared from thin skin and discolored skin

bruising for no reason

belly large and bloated day of surgery

one month after surgery...going down but so many stretch marks

I would show more pictures of some of the changes that happened to my body in the last couple years from cushings. But now in remission and 3 months post op you can start to see the changes for the better. The reason I decided to show the world these pictures is I am hoping someone can relate and go in and see their doctor. I am now 3 months post op and already on the mend. In remission for the time being and things are getting better again. My body is going back to normal. Will all the stretch marks ever go away ? Probably not. But it will be my badge of courage that will remind me how I fought to get to where I am now. Each day I am getting better. Each day I will continue to retrain my mind to tell myself again how beautiful I am. That the disease is not going to define me or who I am. I am not just beautiful on the inside but the outside too. I will show off who I am and not hide from the world. Its not something everyone can do but I plan on working on it daily.......

You are all beautiful! This disease is not going to define who you are as a person. No matter what remember that I am here for you too. I understand even if its just a little. God does not make trash. I had to tell myself that a lot. He just doesnt! We are of his image...and God is not trash:) He is wonderful, beautiful just like you! This is me slowly getting back to what I looked like before.....but what I have gone through has made me stronger.....wanting to help others so they don't have to suffer as much.

my youngest son and I at onset of cushings

Year before cushings and before I cut off my hair

i will get back to this. Cushings took it from me but I will get it back

After my kids were all born

It took time to get diagnosed and it will take time to heal. I have to give myself that time. Here I am 3 months post op......

If you ever want to talk please feel free to email me at Cushingscountrygirl@gmail.com or come visit our Facebook Group called "cushings!!" I will always respond to you! Hope this was somewhat helpful even if to show you that you are not alone. There is also two wonderful sites that you should visit. One is www.Cushingstories.com and the other is www.Cushings-help.org

My Rare Disease, My Story

Novartis.com

 

Oh where do I begin? Let’s start with when I didn’t know what Cushing’s was. Let's back track to the beginning.

The day I got diagnosed was my sixth time to the doctors office for bronchitis that year; it was my second time with walking pneumonia. I went in and cried to my doctor that I was barely eating, gaining weight, I was only sleeping two hours per night, my body always hurt, I had bruising all the time and swore that I was going crazy, had depression or was a hypochondriac. He looked at me and said, “You have Cushing’s I bet.” I thought "Is this man crazy? What is Cushing’s?" He examined me as this was the first time I had seen him. He looked at my neck and said that I had a buffalo hump, saw red and white stretch marks on my stomach. He reviewed my food log and saw I was only eating 1600 calories per day and had gained eighty pounds in a year and half and was still gaining.

I had a hysterectomy three years prior and felt like I had hormone imbalances ever since. Actually, I felt like I had those even before that. I always thought  the loss of muscle, the bruising, and weight gain was all because of that. It was from the hormones but not from that. I went to doctor after  doctor after doctor and they said my estrogen and testosterone was fine. Sometimes they would give me a pill for depression or more estrogen to cure my hot flashes and other symptoms. The depression pills never worked for me. I went to a doctor that gave me more estrogen and had their clinical psychologist call me to see if I wanted “had bruising, cried a lot, was 37 and must have a bad home life.” That made me SO mad! I wasn’t having a bad home life at all. I left that clinic and went to another one because of that. It was meant to be because that’s when I found Dr. Edmonds,my primary care physician, the one that said I probably had Cushing’s.

​After Dr. Edmonds said I needed to test, he set me up for two tests: an 8 a.m. cortisol blood draw and a dexamethasone test. One came back positive but the other was negative. Then my doctor thought maybe I didn't have Cushing's. By this time, I had looked up everything I could on Cushing’s and started researching everywhere I could. I found some videos on Youtube, a couple of websites, blogs and Facebook groups on Cushing’s. I researched Cushing’s specialists and decided to go to, in my opinion, the top endocrinologist at the time, Dr. Theodore Friedman (or "Dr. F., as we call him). He listened to me. I tested A LOT! I even tested wrong at first, by testing when I felt bad instead of testing when I felt better (on a high). At first, some of my tests came back normal because I cycled from high cortisol to low. After learning more and getting help from other Cushies by figuring out when to test, my tests came back high, high and high. I went in for a MRI (you should always get a T3 MRI) and they saw something that COULD be a tumor. I was scared and relieved at the same time. What a weird feeling to have. My endo saw a tumor on the left side and my neurologist saw one on the right. It was very confusing but I was finally diagnosed in the beginning of July 2014 and had my surgery scheduled three weeks later in Houston, Texas at MD Anderson, even though I live in California.

Once I was ready for surgery, it couldn’t come fast enough. I wanted to get rid of the tumor and get back to a normal life. By the time my surgery rolled around, my muscle wasting had me only able to lift about 10 pounds. I still wasn’t sleeping. I was angry at nights and had so much anxiety that my foot was tap, tap, tapping all the time. I bruised if someone touched me hard or bumped me. I was depressed because I felt like my family would do better without me around. I am a mother of four teenagers.  It was hard because I wanted to do so much for them. I felt bad that my husband was picking up the slack. I wanted ME back! I wanted to ride my horse, shoot my bow, cook dinner and be able to move the pot of spaghetti etc. NOW I HAD THE CHANCE!

July 25th,2014, I had my surgery. I wanted to jump up on the table to have my brain tumor removed. I had a calm that day and was prepared for it. My husband was by my side and I waved at him and said “See you on the remission side.” When out of surgery, we were told that they had found TWO tumors on my pituitary that were connected underneath. They felt they had gotten it all out. I was relieved.

It's now seven months after my surgery. I am starting to  lose weight.  I am sleeping every night all night long. My hair is growing back. I am not bruising. I can think again and don’t have brain fog all the time. I feel more like ME again. Every single symptom has reversed or is getting better. I can lift 55 pounds now! That a lot considering I could only lift 10. My friends, family and especially children see the differences and all for the good. I take it day by day because recovery is hard and I have to remember I am not going to be ME all in one day. I have more and more glimpses, though, of the old me. I am happier. I am happy to see the flip side.

I have really tried to become an advocate for Cushing’s. I have started a Facebook group called “ Cushing’s!!” that has over 800 members and is all about Cushing’s support. My friend Van and I started a blog together, www.2cushiegirls.blogspot.com. My good friend Rachel and I have worked hard on a website called www.Cushingstories.com. Its a place to go to see other patients stories. Not only is it their story but we have patient videos (in their own words) and tons of Blogs. We want to let people know there are others out there and have it all on one site. The stories of all of us. It’s why I decided from the beginning to YouTube my journey because that was the first place I looked for others like me. I cried on my first video. I almost didn’t post it. I decided that if I can help one person that it was worth the humility of it all.

 

 

There is a lot of information out there. www.Cushingstories.com is a AMAZING site. Also www.Cushings-help.org. My personal favorites are these blogs because they are real....and you really can see the journey of the person!

 

Living with Cushing's Disease is one of my personal favorites. Its written by a good friend of mine who is also the Co-Founder of Cushingstories.com. She is someone who is amazing at keeping it real and positive. She has had her struggles but has been in remission now for years! Check out her blog https://cushieworld.wordpress.com/

 

Moxie has an amazing site that is chalked full of information!!! She is an amazing lady who will always be there for you to answer questions. Please check out her site at http://www.cushingsmoxie.blogspot.com/

 

Then there is my good friend Nicci who is very real, raw and doesn't hold back what she is thinking or feeling. You should check her out at http://cushiequeen.blogspot.com/

 

I hope now you know a little bit more about my disease and have an understanding of what my family and I have gone through. Each day is amazingly better! As you can see on my blog that I am living and we are having fun! Just thought I would tell you my story!

Bless all of you. Thank you for reading my story. Please feel free to write me anytime. I always answer.  Cushingscountrygirl@gmail.com.

5 Things Every Person Living with a Rare Disease Understands

I am really excited to share this article to you all!! It has my good friend, blogger and Co founder of our site Cushingstories.com in it! They feature quotes from the both of us. I am so proud that Novartis is taking the time to really talk about Cushing's and Advocating for it. Rachel and I both have Cushing's and really want ppl to understand it. This is just the beginning! Novartis is making great strides in getting awareness out there for our disease and many other Rare Diseases also. Please check out the article! #RDD2015 #GetLoud #Raredisease #Cushing's

http://www.novartispharmaceuticals.com/en/stories/detail/5-things-every-person-living-with-a-rare-disease-understands

Van's Recovery List (PICS) and Good news!

Hi guys! I apologize for not updating in so long but don't worry I am still very active in responding to my emails, youtube (onedelicateheart), and instagram (1delicateheart). Ever since coming back from the New Jersey trip I have gotten so many emails and messages from Cushies and people who are in the diagnosing process.  So feel free to contact me from those various social medias. Best way to get a quick response is to email me at yumnguyen07@yahoo.com 
If you guys haven't checked out Rachel and Rae's website cushingstories.com then you better go and check it out now. I am so proud of these ladies for doing so a huge thing for our cushie community. There are stories, contacts, and videos for you to learn more about. Please share <3

So I have big news! I have fully weaned of steroids for 3 weeks! My doctor told me that my left adrenal gland has woken up. It is functioning at a low level so my adrenal gland is not producing like the normal average person but my body has adapted to the low levels so I decided to quickly taper off the rest of the hydrocortisone (Cortef) because let's face it, it is a pain in the ass to take and still felt bloated from small amounts! Well, how am I feeling? I feel almost perfect. Like I am 97% there. There are times I notice the change in energy and feel great then sometimes I feel lethargic and faint due to the fact that I have used up the little amount of cortisol reserve that I produce but nothing that I have not already been through and it is bearable. I still get very faint often but I think I need to start eating a diet that supports the hypoglycemia issue. And of course how do I look? Well here are some photos for you guys to see =]

  These pictures are all post op and recovery. and no I did not get facial surgery during recovery, it's just really good makeup tricks I started learning that I want to share to you all soon! But now Here is the breakdown of my recovery. This is not the most organized list sorry! lol

6 Month Post OP: moon face was shrinking, acne growth stalled, skin got a bit drier, still bloated, face still felt heavy (hard to smile or open eyes wide), droopy skin, reddish orange skin, no hair growth, depression, anxiety, nausea, hello collarbones! dry eyes, adrenal insuffiency was at it's worse due to tapering. high bp but pre diabetes was gone. Sleeping all the time. Lazy, no motivation. panic attacks. Crying all the damn time.

10 Month: Face continued to shrink, features feminizing (eyes and lips look more pretty??), smiling is easier but still felt like cheeks were heavy, acne fully stopped, skin healing, hair growth (baby hair halo) not so healthy looking though crinkly hair texture, period was back (still irregular), buffalo hump shrinking, itchy dry skin to the point I can't sleep, body adapting to adrenal insuffiency, acne scars, less depressed, up and down emotions and mood, nausea, faint, period still irregular. Insomnia. undereye bags circles. Panic feelings, no attacks.

12 Month: I have to say I felt much happier after a year since the surgery, My face is almost back to normal, features are slowly defining, smiling is easy, hair is starting to regrow fuller but texture is still crinkly, no more acne problems, super duper dry skin, less crying, less stressed, I notice myself being funny and enjoying life like never before, began socializing again, face dimple is starting to show, jawline, cheekbones and nose looking slimmer. less nausea, Less paranoid. Insomnia. Doing normal activities. Shopping addiction due to weight loss and increased confidence LOL

14 Month: period came back regularly (feeling prettier after every menstrual cycle), skin is glowing, reddish orange skin fading, acne scars healing, less hair fall, wondering if this was as good as it gets??, face features more defined. fainting, low bp, dizzy, Mood is pretty stable but I still will get cranky when I being weaning off more steroids, more confident, no more sadness and resentment in my heart.. I literally woke up one day feeling like all the bad stuff and people in the past did not affect me anymore. Truly a miracle. Is this it? Will it get better? Sleep is up and down.

16 Months: face is back to normal, dimple is fully visible, jawline is chiseled, sleeping more, period is irregular again (due to low amount of steroids?), hair is healthier and shinier better texture, acne scars are less visible, night sweats, fainting, dizzy, extreme low bp (good thing? idk), satisfied with how i look but still worried if I still would have the highs and lows of moods and dizziness.

18 Month (fully off steroids): Face got even smaller less bloated (yeah I didn't know that was possible), I can now even smile with my teeth effortlessly, skin fully healed, scars are not as visible, I feel confident enough to go makeup free while running errands, people complimenting me, strangers think I am younger than my age, my mom says I look like I did back as a senior in Highschool! Thanks mom. Still faint and dizzy, no more obsessive thoughts, no more paranoia, no more guilt, anxiety, or shame, no more negative feelings. Mind is at peace, skin still dry, period still irregular but still coming, facial features look lifted, eyes are brighter, eyes are less dry, feeling motivated, not afraid of speaking my mind. No more panic attacks! Still food sensitive. No more waking up at 9am to take Cortef yay!
 

My body Recovered:
Less joint pains, muscles are starting to look more defined with little exercise around month 9 post op, no dieting, appetite is normal. No more feelings of being ravenous with food, body is getting a more feminine curvier shape, fat is relocating to where it should be instead of on my stomach, buffalo hump gone. I can feel my spine, collar bones, less body and facial hair, more hair on head lol... no more orange hands, still food sensitive to salt, sugar, and MSG. Can drink coffee without panic attacks. Can lightly workout and lift light weights with less muscle pain. Still cannot run or do any hardcore exercise training (not that I ever want to again). more flexible. no more bloating in weird places. More active. Feet shrank 1 size down (size 7 to 6-5.5), no more rapid hearbeats. Feels like I can breathe again. The heavy brick feeling on my chest is gone yay! Digestion is greatly improved.

That is all I can think of right now. I am thrilled that my future is filled with more optimism. I am glad that majority of the stuff is reversible. I am still stuck with a few minor health nuisances that Cushing's affected. I really don't think it is going to ever get me down because everything that I prayed for I have been given by God and the Universe. This whole experience really shaped me to become who I am now. I am stronger and humbled than I was ever before getting sick. I am glad that I got to meet so many people and understand the struggle of getting everything taken away from me. I learned the lesson of compassion, patience, and gratitude.  I will continue to advocate for Cushing's and rare diseases. So I will always come back to blog and update my life. I also want to be more active on my youtube channel and posts some videos of me talking about various Cushie subjects and giving advice to Cushie patients and also post my beauty and health regimen. I just need to get over my fear of talking to a video camera lol. Thank you guys for reading this post and supporting me through this journey. I will never forget. Much love!

Before and after

Cushingstories.com Thunderclap Campaign

https://www.thunderclap.it/projects/21819-misunderstood-and-misdiagnosed/embed

Please go support this campaign by Cushingstories.com to increase Cushing's awareness.  Once we get 100 supporters (by February 22, 2015), our campaign will be forwarded to celebrity Thunderclappers to pick causes they care about and tweet to their followers. Its free and easy as just clicking a button. I can see who has followed it so please let me see your smiling face!

Thanks for your help!

NEW CUSHINGS WEBSITE

I would like to tell you all about the new Cushing's Website. It was made by a good friend of mine Rachel Wilson and I. When I first found out about Cushing's I didn't know where to look for Videos, Blogs and Stories of others. This website has it all!!!! It just got launched today after 4 months of working on it! Please share with others......you never know who it will help out!

www.cushingstories.com

Thank you to all of you who submitted stories, videos or your blogs to help others. Without you we couldn't of done this!

Love, Rae

Is it Remission? IS IT??

As you all know I am 3 months post op from having pituitary surgery to get a tumor out. I have had Cushings for at least 4 years but can go back about 6. I have been waiting on my 3 month tests to see if I am truly in Remission for Cushings Disease. This has been my mission.....to be in remission! Its everyone who has Cushings mission because we just want to feel better, get healthier, get our lives back! Today I feel like this lady!!!

I feel remission symptoms poking out more than my Cushings symptoms. In the last three months I have been now able to pick up almost 30 pounds instead of 10. I have lost 24 pounds even though I am still weening from cortisol. I sleep every night. No insomnia. My general mood is better. My hair is starting to grow back. I do not have high blood pressure anymore. I am not bruising at the slightest touch. I now get cold instead of always being hot and my life is starting to peak out! I am starting to see every single part of me repair although it maybe slow. My life is coming back! I see bigger and bigger peaks of me...of the Real Rae!
BUT................................I still worry. Am I remission? Or am I not? Am I in remission or am I not? Am I just getting better because they got most of my tumor out? Or do I have cells left and I just am feeling better and doing better but not truly in remission. I needed to make sure my testing was just as good as my symptoms were. Today was that day! I feel it was one of the best days of my life. Is that sad? Probably but this has been one of the battles that I hope will forever be over with! Its not easy by any means.

ACTH 13 (normal 6-50)

Cortisol at 8am blood draw 10.9 (4-22normal)

So I got all my test results back. I had 8am blood draw and I am in remission!! REMISSION! I have wanted to hear that for so long that I keep looking at myself in the mirror and saying to myself "Yes you are!". My cortisol is great now! So much lower than it ever was! These are great numbers for me to have. My acth has gone down so much! Even at the hospital on day 5 after my surgery  it was 25 so it has gone down to 13. To be honest guys...I am crying as I write this because I needed that validation from my numbers as much as from my symptoms.

I still need to remember that I am 3 months post op from a brain surgery. I have to remember that I am not that full on superwoman that I want to be. I have that peaking out and know its there. I have to be careful.I just had my daughters 16th bday party and it was a huge success. I knew it would take every last piece of energy out of me but with friends and family to help me it would be amazing. I have to remember to heal. I took that day and ran myself ragged. I will pay for that day for many days after but to me it was worth it. I found myself doing things that I couldn't do for a really long time. It was an amazing moment in time. I know that my daughter will remember her masquerade bday party forever because of it. Sweet 16! I had to do it....and I could! Before surgery there would be no way I could of done what I did that day. I even danced with my husband! I hadn't danced with him in years. I laughed! I had fun! I decorated and made it so she would remember this forever! I had great memories with her that I hope she will never forget. All this because my amazing Dr Edmonds, my endo Dr Friedman and my Neurosurgeon Dr. McCutcheon took the time and their knowledge to help me. These three men will always have a place in my heart for they gave me my life back! I am in Remission! Its a day to celebrate! Just like my daughters sweet 16......here are a couple pictures of that special day!

My daughter Cassie sweet 16 Masquerade Ball

My husband Ryan, My daughter Cassie and I

Ready for my first party after surgery (3 months)

My youngest son Jason Dancing

My middle son Joshua

My oldest son Jackson

Kids getting the dance floor set up

Gross Pics....the ugly disease....But this is ME.

Cushings.....the ugly disease:( Okay first off I would like to say I have heard this so many times and I have to disagree! This is not the ugly disease. Actually would make me mad or sad when I heard this. This is a hard enough disease of which so many ppl have a hard time getting diagnosed. I am going to really expose myself in this blog with pictures that I am not proud of and never thought I would put out there for anyone or everyone to see. BUT I am going to because I want to show some of the signs and symptoms of what could happen and what did happen to me. First off I would like to say "I AM NOT UGLY....and none of what is happening to me or has happened to my body is because I wanted it."

hot spots that just appeared

My buffalo hump that grew

round moon face

bad stretch marks just appeared from thin skin and discolored skin

bruising for no reason

belly large and bloated day of surgery

one month after surgery...going down but so many stretch marks

I would show more pictures of some of the changes that happened to my body in the last couple years from cushings. But now in remission and 3 months post op you can start to see the changes for the better. The reason I decided to show the world these pictures is I am hoping someone can relate and go in and see their doctor. I am now 3 months post op and already on the mend. In remission for the time being and things are getting better again. My body is going back to normal. Will all the stretch marks ever go away ? Probably not. But it will be my badge of courage that will remind me how I fought to get to where I am now. Each day I am getting better. Each day I will continue to retrain my mind to tell myself again how beautiful I am. That the disease is not going to define me or who I am. I am not just beautiful on the inside but the outside too. I will show off who I am and not hide from the world. Its not something everyone can do but I plan on working on it daily.......

You are all beautiful! This disease is not going to define who you are as a person. No matter what remember that I am here for you too. I understand even if its just a little. God does not make trash. I had to tell myself that a lot. He just doesnt! We are of his image...and God is not trash:) He is wonderful, beautiful just like you! This is me slowly getting back to what I looked like before.....but what I have gone through has made me stronger.....wanting to help others so they don't have to suffer as much.

my youngest son and I at onset of cushings

Year before cushings and before I cut off my hair

i will get back to this. Cushings took it from me but I will get it back

After my kids were all born

It took time to get diagnosed and it will take time to heal. I have to give myself that time. Here I am 3 months post op......

If you ever want to talk please feel free to email me at Cushingscountrygirl@gmail.com or come visit our Facebook Group called "cushings!!" I will always respond to you! Hope this was somewhat helpful even if to show you that you are not alone.